A Letter to my 10-year-old/ newly diagnosed Self

Baby Girl,

I know it’s confusing right now. I know it feels like your body and the people around you are against you.
I know this is not what you wanted for yourself and that every birthday feels like a reminder that this disease worsens with time.
I know life can look very hazy as you look at your future

But I promise you that everything will work out.
It may not seem like it right now but, everything takes time.
Keep your patience, my love. It will get better.

You will have all the normal experiences of a human being like you always wanted. The love, heart breaks, a job, college and much more.
You will learn to accept the way your body changes with this disease.
You’re still walking right now but at the lowest point of life. You will learn to rise high in that wheelchair of yours as you grow older.
You will learn, so don’t worry. Life is all about learning and you will.

Did you know that you will be public speaking even though you dreaded it growing up!
Did you know that you’re writing a book even though you failed in English!
Did you know you will find people who will understand you, way better than you ever have!

So much is gonna happen in life and this disease is just the first test in life. Don’t get disheartened my love.
You have a purpose, and he is behind you, guiding you on every little move. Trust that and keep going ✨

Hugs,
Your Fortune Teller 😉