My Heart’s Musings
~ Where the unseen finds expression
Why Do You Write?
Writing has become a place where I can release all things I’ve been holding on to, and when others relate to it, it feels like a win‑win <3
The Beauty of Season Change 🌸🍂
I’ve found myself in constant awe of nature. Not just because of the beautiful landscapes, but cause of the quiet, continuous evolution of these seasons. Nature teaches us so much without ever having to raise its voice..
Why do we need to love god? We need to just have faith.
How can we truly trust anyone without loving them? I mean you technically can I guess but, that would be superficial. Love gives that trust depth. The faith would go deeper.
If Friedreich’s Ataxia (FA) Wrote a Letter ✍️
My previous letter to my 10-year-old newly diagnosed self did really well so I thought I’d write another one — this time from FA itself, as if it were writing to me!
Sympathy is Easy. Empathy is Hard
The world doesn’t need more people who feel bad for others — it needs more people willing to sit beside them, without judgment, without rushing. And to do that, we have to start with ourselves first. 💫
Why do u talk about disability or FA so much? Has it become your identity?
Disability isn’t my whole identity. It has played a very big part in the way I look at things - yes but, I’m still a girl you know…
Live Like You’re Dead
The first time when I heard this, I honestly used to wonder why anyone would be happy living like that but, I think there’s more to it than I first understood. (There always is!)
The Unexpected Joy of Aging
Aging isn’t a decline. It’s an upgrade. We age because we are still becoming the person we need to be ✨
How to Develop Faith?
We are never unseen in HIS eyes. We may take a moment to ourselves but, He never leaves. He keeps appearing - because GOD is great.
A Candid Convo with the CEO, Jen Farmer at FARA
That is why FARA says, “We believe that transformative change lies at the intersection of people and science.”
Raising a Little Warrior with Friedreich’s Ataxia: A Mom’s Perspective
“One day, when she looks back on these memories, I hope she doesn’t see FA, but a life wrapped tightly in love, lived with purpose, presence, and joy.” ~Laurel
Redefining Strength: Masculinity, Disability, and the Meaning of Contribution
The Two Disabled Dudes 🎙️ dive into their experiences as men living with Friedreich’s Ataxia
Finding My Voice: My College Journey With FA
“College is intimidating at first, but it will force you to grow so much as a person in all the best ways.” ~ Noah Griffith
Friedreich’s Ataxia (FA) — more than people realize
“This is why FA affects so many systems at once. It’s not just walking.”
Reinventing the meaning of Hope with Friederichs Ataxia (FA)
“When we wrap this hope so tightly around our heart then it becomes a form of expectation, and when that isn't reached, we end up drowning in disappointment and misery.”
What I wish I knew in my 20s: 20 Life Lessons
20 Life Lessons that I wish I knew earlier! And Advanced Happy New Year <3
Being Grateful 2025
Reminding ourselves what we are grateful for can really change the trajectory of our day. (My heart was filled with happiness just by writing this!)
Parenting a Child with Disabilities: A Mom’s Unconditional Love
People will always comment, “I could never do what you do.” That’s not true. Everyone can do this. As parents, we do the best we can, one day at a time. That’s all, and that’s enough. ~ Jennifer Allen
Freedom from Freedom
But, what if I told you, we are chasing the wrong thing. It was never freedom that we desire…
Living with a Disability and Leading a Spiritual Life – The Family Dynamic
What we have, as a family is something that only the 4 of us can truly understand but, I will try and explain it today.