My Heart’s Musings
~ Where the unseen finds expression
Sympathy is Easy. Empathy is Hard
The world doesn’t need more people who feel bad for others — it needs more people willing to sit beside them, without judgment, without rushing, without turning away. And to do that, we have to start with ourselves first. 💫
Why do u talk about disability or FA so much? Has it become your identity?
Disability isn’t my whole identity. It has played a very big part in the way I look at things - yes but, I’m still a girl you know…
Live Like You’re Dead
It may seem a little ironic that I shared a Birthday Blog last week and now I’m talking about death. The title might also sound harsh at first but, give me a chance to explain.
The Unexpected Joy of Aging
Aging isn’t a decline. It’s an upgrade. We age because we are still becoming the person we need to be ✨
How to Develop Faith?
We are never unseen in HIS eyes. We may take a moment to ourselves but, He never leaves. He keeps appearing - because GOD is great.
A Candid Convo with the CEO, Jen Farmer at FARA
That is why FARA says, “We believe that transformative change lies at the intersection of people and science.”
Raising a Little Warrior with Friedreich’s Ataxia: A Mom’s Perspective
“One day, when she looks back on these memories, I hope she doesn’t see FA, but a life wrapped tightly in love, lived with purpose, presence, and joy.” ~Laurel
Redefining Strength: Masculinity, Disability, and the Meaning of Contribution
The Two Disabled Dudes 🎙️ dive into their experiences as men living with Friedreich’s Ataxia
Finding My Voice: My College Journey With FA
“College is intimidating at first, but it will force you to grow so much as a person in all the best ways.” ~ Noah Griffith
Friedreich’s Ataxia (FA) — more than people realize
“This is why FA affects so many systems at once. It’s not just walking.”
Reinventing the meaning of Hope with Friederichs Ataxia (FA)
“When we wrap this hope so tightly around our heart then it becomes a form of expectation, and when that isn't reached, we end up drowning in disappointment and misery.”
What I wish I knew in my 20s: 20 Life Lessons
20 Life Lessons that I wish I knew earlier! And Advanced Happy New Year <3
Being Grateful 2025
Reminding ourselves what we are grateful for can really change the trajectory of our day. (My heart was filled with happiness just by writing this!)
Parenting a Child with Disabilities: A Mom’s Unconditional Love
People will always comment, “I could never do what you do.” That’s not true. Everyone can do this. As parents, we do the best we can, one day at a time. That’s all, and that’s enough. ~ Jennifer Allen
Freedom from Freedom
But, what if I told you, we are chasing the wrong thing. It was never freedom that we desire…
Living with a Disability and Leading a Spiritual Life – The Family Dynamic
What we have, as a family is something that only the 4 of us can truly understand but, I will try and explain it today.
Love Has No Boundaries: Empowering Interabled Couples
“Patrick is proof that love can carry you through anything, and I’m so grateful that he’s mine.” ~Alexis Baker <3
The Truth About Wheelchair Travel - What Accessible Vacations Are Really Like
No matter how Accessible the vacation is, these are just some things I had to come to terms with after multiple travels with my wheelchair.
Wheelchair Travel in Key West: 5 Cool & Accessible Experiences
I put together this list of accessible activities that I enjoyed and would totally recommend!
Embracing Change - Meet The New Tesla👩🏻🦼➡️
I took a major leap of faith and ordered my first power chair. My friends back in college used to call my wheelchair a Tesla which for this chair, is so apt!