My Heart’s Musings
~ Where the unseen finds expression
Redefining Strength: Masculinity, Disability, and the Meaning of Contribution
The Two Disabled Dudes 🎙️ dive into their experiences as men living with Friedreich’s Ataxia
Finding My Voice: My College Journey With FA
“College is intimidating at first, but it will force you to grow so much as a person in all the best ways.” ~ Noah Griffith
Friedreich’s Ataxia (FA) — more than people realize
“This is why FA affects so many systems at once. It’s not just walking.”
Reinventing the meaning of Hope with Friederichs Ataxia (FA)
“When we wrap this hope so tightly around our heart then it becomes a form of expectation, and when that isn't reached, we end up drowning in disappointment and misery.”
What I wish I knew in my 20s: 20 Life Lessons
20 Life Lessons that I wish I knew earlier! And Advanced Happy New Year <3
Being Grateful 2025
Reminding ourselves what we are grateful for can really change the trajectory of our day. (My heart was filled with happiness just by writing this!)
Parenting a Child with Disabilities: A Mom’s Unconditional Love
People will always comment, “I could never do what you do.” That’s not true. Everyone can do this. As parents, we do the best we can, one day at a time. That’s all, and that’s enough. ~ Jennifer Allen
Freedom from Freedom
But, what if I told you, we are chasing the wrong thing. It was never freedom that we desire…
Living with a Disability and Leading a Spiritual Life – The Family Dynamic
What we have, as a family is something that only the 4 of us can truly understand but, I will try and explain it today.
Love Has No Boundaries: Empowering Interabled Couples
“Patrick is proof that love can carry you through anything, and I’m so grateful that he’s mine.” ~Alexis Baker <3
The Truth About Wheelchair Travel - What Accessible Vacations Are Really Like
No matter how Accessible the vacation is, these are just some things I had to come to terms with after multiple travels with my wheelchair.
Wheelchair Travel in Key West: 5 Cool & Accessible Experiences
I put together this list of accessible activities that I enjoyed and would totally recommend!
Embracing Change - Meet The New Tesla👩🏻🦼➡️
I took a major leap of faith and ordered my first power chair. My friends back in college used to call my wheelchair a Tesla which for this chair, is so apt!
Following Your Heart
“Following our heart is actually the most natural thing we can do. As children, we did it instinctively in play, we relied on intuition when knowledge wasn't available.” Aditya B
Self-Care Checklist to help us Keep Going
Everyone has their bad days but, when it prolongs for weeks that’s when we need an action plan to stay sane during the insane phases :)
Disability Pride Month
Today, let’s talk about the biggest contradictions on this planet - the love hate relationships that make us question our values.
A Letter to my 10-year-old/ newly diagnosed Self
If I could post a letter to my 10-year-old/ newly diagnosed self then, I’d write this :)
Friedreich’s Ataxia Awareness (FA) | Lived Experiences
May 17th is Friedreich’s Ataxia (FA) awareness. Today, we wanted to highlight the different FA stages of Kiersten Riggs (22) and Hasitha Illa (29)
What Should I do Next? | Meditation for Clarity
We all are confused on what to do next. I did my college in Biotechnology and ended up in IT. Did you know you can do Meditation for Clarity and Guidance? #Heartfulness
Nothing Comes Easy | Mental Health Matters
I was too little to realize that maintaining your mental health matters. But now I know that it is important maybe, more than our physical health.