If Friedreich’s Ataxia (FA) Wrote a Letter ✍️

My previous letter to my 10-year-old newly diagnosed self did really well so I thought I’d write another one — this time from FA itself, as if it were writing to me. (If you don’t know what FA is then, CLICK HERE) Let’s begin :)

Hi. It’s me. Friedreich’s ataxia.
Yes, that FA. 🧬
I know you didn’t invite me, but honestly?
I don’t wait for invitations. 🫥
I’m the uninvited guest. The least favorite one that never gets the hint to leave!

Listen, I know I’m A LOT

You say I make things harder?
I say I’m adding spice. 🌶️
You say I keep making you fall?
No no - that’s me checking your warranty.
Balance issues?
That me preparing you to be the best dancer of your life. 💃
Fatigue?
I’m just helping you rest more. That’s self-care😉
I rearrange your plans like I’m the CEO of your calendar. 🗓️

You try to ignore me — adorable.
You try to outsmart me — bold.
You try to live your life anyway — rude, but I respect the audacity.

Let’s be clear: I am the plot twist of your story.

But, I Keep Seeing You
I see you rolling your eyes when I make something harder. 🙄
I see you adjusting, adapting, refusing to let me have the last word.
I put in all this effort to be the villain and you’re out here building character, finding humor, and refusing to crumble.
Frankly, it’s exhausting. For me.

You keep doing things I didn’t think you’d do
You keep laughing. 😆
You keep showing up.
You keep proving that I can mess with your body, but I can’t touch your spirit. 🌻

Honestly?
If I had feelings, I’d be offended.
But since I don’t, I’ll just keep being my inconvenient, dramatic self 🎭

So go ahead.
Tell your story.
I’ll be over here pretending I’m the main character,
while everyone knows the real star of this show is you. 🌟

Love,
The Verry Sassy and Chaotic Friedreich’s Ataxia 🧬

Can’t Control it so might as well have fun 🤷🏻‍♀️🙃 #DeluluIsMyOnlySolulu