My Heart’s Musings
~ Where the unseen finds expression
Raising a Little Warrior with Friedreich’s Ataxia: A Mom’s Perspective
“One day, when she looks back on these memories, I hope she doesn’t see FA, but a life wrapped tightly in love, lived with purpose, presence, and joy.” ~Laurel
Finding My Voice: My College Journey With FA
“College is intimidating at first, but it will force you to grow so much as a person in all the best ways.” ~ Noah Griffith
Friedreich’s Ataxia (FA) — more than people realize
“This is why FA affects so many systems at once. It’s not just walking.”
Reinventing the meaning of Hope with Friederichs Ataxia (FA)
“When we wrap this hope so tightly around our heart then it becomes a form of expectation, and when that isn't reached, we end up drowning in disappointment and misery.”