My Heart’s Musings
~ Where the unseen finds expression
A Candid Convo with the CEO, Jen Farmer at FARA
That is why FARA says, “We believe that transformative change lies at the intersection of people and science.”
Raising a Little Warrior with Friedreich’s Ataxia: A Mom’s Perspective
“One day, when she looks back on these memories, I hope she doesn’t see FA, but a life wrapped tightly in love, lived with purpose, presence, and joy.” ~Laurel
Redefining Strength: Masculinity, Disability, and the Meaning of Contribution
The Two Disabled Dudes 🎙️ dive into their experiences as men living with Friedreich’s Ataxia
Finding My Voice: My College Journey With FA
“College is intimidating at first, but it will force you to grow so much as a person in all the best ways.” ~ Noah Griffith
Parenting a Child with Disabilities: A Mom’s Unconditional Love
People will always comment, “I could never do what you do.” That’s not true. Everyone can do this. As parents, we do the best we can, one day at a time. That’s all, and that’s enough. ~ Jennifer Allen
Love Has No Boundaries: Empowering Interabled Couples
“Patrick is proof that love can carry you through anything, and I’m so grateful that he’s mine.” ~Alexis Baker <3
Following Your Heart
“Following our heart is actually the most natural thing we can do. As children, we did it instinctively in play, we relied on intuition when knowledge wasn't available.” Aditya B
Friedreich’s Ataxia Awareness (FA) | Lived Experiences
May 17th is Friedreich’s Ataxia (FA) awareness. Today, we wanted to highlight the different FA stages of Kiersten Riggs (22) and Hasitha Illa (29)